Some Things May Always be Wrong
I don't feel discomfort or pain if it happens unexpectedly / through unawareness. It feels like I don't get any signals, however, if I directly inflict pain I do feel it. For example, I have tried crushing my fingers with pliers - it hurt! I've articulated some of my unusual pain experiences below.
I severely burned my leg from a red hot metal garden fire bin structure while cooking burgers in our garden. I didn't realise until I saw the burnt and scarred gash - 6 inches long, a quarter inch wide and an eighth inch deep down my calf that I'd been burned. We determined the only way it could have happened was through brushing my leg against the fire bin.
I can be wearing shorts and walking Ronnie (our dog) through fields full of nettles. I may be distracted while throwing Ronnie a stick and after five minutes my legs are a hive of nettle stings.
I have received mosquito stings on holiday abroad and wasp stings in Britain without feeling anything. I only realise I've been bitten when the swelling / spot shows up on my skin.
I observed an irregularity in my groin despite feeling no discomfort, my doctor determined without any hesitation that I had a hernia.
I developed sepsis which was attributed to severe pneumonia, the only symptoms I felt were tiredness.
My taste sensation has gone. I ate hot chillies and seeds during a meal with a friend where I was solely concentrating on the conversation and I didn't realise I was consuming extremely spicy food. I can usually recognise what I am eating from its texture, but the taste is meaningless.
Some people ask "Does nothing taste of anything?" My response is "Everything tastes of nothing." It's a subtle word play, but it describes more accurately the feeling I have when eating. I could take the negative approach of thinking nothing tastes nice, but I'd rather stick with the outcome that nothing tastes bad!
In 2018 I ate a deep fried Mars bar in Glasgow, I'm glad to say I didn't like it. The truth is that it was the texture / difficulty in swallowing which I struggled with, not the taste :-)
I feel full up very quickly. I can go a whole day without eating, then just one bite of a sandwich is enough to make me feel full. Finishing a sandwich or meal becomes a chore rather than an enjoyable experience.
My smell sensation is almost zero. I do not recognise toilet smells, perspiration smells or any kind of perfume fragrance.
My touch sensation is impaired. I cannot distinguish between wet and dry towels on the washing line. I have reduced left hand dexterity, manipulating coins in a purse is almost impossible with my left hand. Cutting fingernails on either hand with clippers is very clumsy. I have significantly impaired ability to write legibly with my right hand, I haven't signed my name the same twice in succession since my TBI.
I have severe short-term memory deficiency, it affects me in almost everything I do, though I deal with it really well by being an avid note-taker. Short-term memory anxiety results in me feeling compelled to do many things straight away, even when not practically sensible.
Short-term memory deficiencies seem to drive lots of people crazy, but not me since I have faith in my coping strategies. I draw an analogy to far-sightedness, where people accept they can read the words on an advertising hoarding 30 metres away but can't read the restaurant menu in front of their eyes. In this circumstance people simply pop on their reading glasses and cope with it. With short term-memory problems many people often can't reconcile how they can remember events from their school years but can't remember what they had set out to do that morning. I have learned that short-term memory and long-term memory is managed by different areas of the brain, which typically deteriorate at differing rates in normal life, or more rapidly following a TBI. I refuse to be frustrated by short-term memory problems: I either use coping strategies or deliberately avoid things which I know I will struggle with.
I used to be an avid novel reader, however, following my TBI I needed to make notes of the characters / roles / relationships as I read. Reading became a chore such that any pleasure was lost, so I simply stopped reading novels.
I need to be selective about the films I choose to watch as anything with a plot to follow (such as a murder mystery) becomes so difficult to follow that any enjoyment is lost.
I cannot remember people's names / job roles no matter how many times I am told them.
I cannot recall new faces very well anymore.
I needed to take photos of where I've parked the car at supermarkets in the early days after getting my driving licence back in 2017 and 2018, this limitation has now receded (2020).
Early Onset of Tiredness
Every day I become tired early by afternoon. I have learned that just a twenty minute sleep / bed rest during the middle of the day (typically at 1PM) makes the world of difference. When I attempted to plough on regardless, I'd have an almost bed-bound evening. I discovered this coping strategy by chance, it works, so I stick to it religiously.
Ruth and I had wanted to visit our family in Portugal, but were uncertain about how I would cope with flying. The solution was to buy cheap RyanAir return tickets to Dublin from Manchester airport (near home). We didn't even leave Dublin airport, but we had established that I wasn't likely to suffer an anxiety problem when travelling to Portugal.
I used to be fantastic at finding my way around new places, typically when on holiday. It took me over a week in July 2017 to remember that the toilets in the new office building I was working at were a simple left when exiting the office door. I first became aware on a weekend break in York in 2016 when I went out several times in the day and evening and didn't walk too far but I had no idea how to return to the hotel. It wasn't just a case of not knowing if it's the second or third left, I couldn't recall if my target destination was north, south east or west.
Monday 18th December 2017. I think I have developed the flu, my eyes are streaming, my throat is very sore, I feel lousy. In short - ace news! After going nearly 3 years without a headache or a cold it feels great to have normal symptoms.
Summer 2019. While walking through a Manchester suburb I smelt what I thought was dog muck. I asked Ruth if this was indeed the case and she said "Yes". I was delighted :-)
Cloudy Head Reminder
Just for fun I raced my 11 year old daughter for only 80 yards or so earlier today (May 2018) and it resulted in me having a cloudy head. I didn't run like crazy at all, but it was a big reminder that I should be really careful about trying too much too soon.
Limited Learning Capacity
In June 2018, 3 years post-TBI and 1 year after returning to professional employment I attended a training course to learn new IT skills - Amazon Web Services (cloud technology). I spent 4 days studying hard and enjoyed the learning experience, yet at the end of each day my recollection of what we had done each day was zero, I expectedly failed the subsequent exam test. It was a new experience for me as I'd always been very skilled at learning new material and passing exams. Rather than become frustrated, I simply accepted that learning anything new is likely beyond me post-TBI.
Positive Mental Attitude
I've clearly written lots on these web pages, but there's one person's story I found on BrainLine.org which I feel puts recovery into context far more succinctly and convincingly than anything I've written. You can view the entire article by clicking on this link, from which I've taken the following paragraph.
"Finally, I want to share what I consider the thing that makes every pain-staking minute of recovery worthwhile. The silver lining, if you will, is ALL OF THE MOMENTS OF LIFE I didn’t miss out on thanks to my exceptional good fortune of surviving the odds."